Parent self-care

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Your CF team has probably given you lots of information about cystic fibrosis and how to manage your child’s day-to-day health. But bear in mind that the most important part of this whole plan is you.

Research has indicated links between a parent’s wellbeing (particularly a mum’s) and their child’s mental and physical health. This means that looking after yourself will also have a positive impact on your child.

Self-care can come in many forms and, although having a newborn can make things difficult, it’s important to find time for it.

Research has indicated links between a parent’s mental health (particularly a mum’s) and their child’s mental and physical health

Looking after YOU

Be kind to yourself as you adjust to the new information and diagnosis. Here are a few ideas that can often help.

  • Don’t be hard on yourself. Acknowledge that you can only do so much, and allow yourself to make mistakes and forget things occasionally. You aren’t going to get it perfect every day
  • Use positive self-talk. Focus on what you achieve each day and the quality of life your family has.
  • Celebrate the wins.
  • Take time out. This will make you more resilient.
  • Practice relaxation or mindfulness.
  • Make sure you get enough rest, eat healthily and exercise – they’re all good for you and great role modeling for your child/ren.
  • Encourage your partner or a family member or friend to attend initial clinic appointments so you’re not the only person hearing new information.

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Acknowledge that you can only do so much, and allow yourself to make mistakes and forget things occasionally.

Click on Getting Support if you, your partner or anyone else in your family is experiencing anxiety, depression or any other mental health issue. You’ll find a list of helpful resources.

How to grieve

  • Grieve your way. No one can tell you how to feel.
  • Understand that grief takes time. You’ll sometimes be surprised by how you’re feeling.
  • Share your feelings with someone you trust, and don’t be afraid to show your emotions.
  • Be aware that difficult events, like going back to the hospital, may set off memories and sadness and anxiety
  • Tell people who offer to help exactly what you need – a shoulder to cry on, a helping hand with the children or making meals. Don’t be afraid to ask for help or accept it as it comes.

If your grief feels too much to bear, explore options for professional help to work through intense emotions and overcome obstacles to grieving. Visit beyondblue at https://www.beyondblue.org.au.
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